November 15, 2024
Body Integrity Identity Disorder
Hi! If you're here then you're probably wondering, "why is this character missing their limbs?". For others, the reason is usually that they're either an amputee in real life, that they just like the look of robot limbs or that they're into it as a kink. Personally though, I have BIID and portraying my sona without its limbs is a comfort thing.
Alternatively, if you were linked from a drawing of a character that isn't mine, the owner of that character is dealing with the same thing.
What is BIID?
Body Integrity Identity Disorder aka BIID is a poorly understood condition where your brain's body image is missing parts of your actual body. It's kind of like being trans, where your brain's body image is that of the opposite sex (or something in between or other), except parts of it are missing entirely.
This can be pretty much anything: your senses, your ability to control specific limbs, parts of your body existing in general.
For me, personally, it's all of my limbs from about a third of the way down.
What is that like?
The way it manifests is basically that I'm dysphoric about those parts of my body. I also have constant obsessive thoughts about what it'd be like to live without them, ranging from little things that'd have to change in my life to fully imagining the process of having something like that done in detail. Generally I think about this for at least 2 hours a day. It's impossible not to have these thoughts.
It's really hard to cope with, especially considering how hard it is to tell people about this. I'm lucky enough to have a very supportive husband and friends who don't judge me and let me talk about it. Drawing affirming art helps a lot. I also like to pretend sometimes (only letting myself use one of my arms and such).
Are there any treatment options?
Historically a lot of things have been tried and the only thing that actually worked was letting people with this have their undesired body parts removed. Therapy does help make the symptoms better, but they never go away.
Having this done is not currently an option anywhere in the world, the medical community sees it as unethical despite the fact that it helps people and in many cases they can function better afterwards.
Personally I would not want to pursue that option unless there are functionally equivalent prosthetics available since I like, need these to do things.
Are you gonna ..?
If you looked up anything about this condition online, what you likely found were articles talking about people with this who have taken the extreme measure of removing their limbs themselves. While there are people who do this, it's very rare. Most of us just find ways to live with it. In general, someone's only going to do this if they feel like they're completely alone and out of options to cope.
The reason why these cases are the only ones that get written about is that the media would rather get a quick sensationalist article out of us and continue negatively affecting how others view people with this condition than attempt to help in any way.
I feel like this applies to me, what now?
This condition is very poorly understood. While it's been known about for a long time, it was only officially recognized by the WHO very recently, and the most recent US diagnostic manual (DSM-5) still does not recognize it. The vast majority of doctors do not know about its existence. This unfortunately means that in most cases medical professionals will not only not help you, but in a lot of cases they will actively turn you away as they refuse to believe this is a real condition.
You may be able to find a therapist that will be willing to talk about this and offer advice or coping methods, but be sure you trust your therapist before you bring this up as it could be misinterpreted as active desire to harm yourself.
If you want to know you're dealing with this for sure, the best thing to do would probably be to talk to someone who knows they have this and compare your experiences.
Coping methods
This section (and below) is specifically for those dealing with this. If that is not you, you can stop reading here.
Having BIID is not the end of the world. With some practice you can learn to lead a happy life despite it.
The main thing that helps me cope with this is having friends who are dealing with the same thing and / or just get it. Keeping it a secret from those closest to you will cause you a lot more pain than the actual condition. With that said, try to be tactful about it as it can be a lot to tell someone.
When the feelings / thoughts get particularly bad, here's a few things I like to do:
Visual Separation
Visually separating the parts that belong to you from those that don't helps a lot. There's a few ways to do this. I like to wear stockings / arm sleeves when my limbs would normally be exposed. Most of the time I wear yoga pants w/ socks that cover my legs and long sleeves w/ gloves that cover my arms. Alternatively drawing a line where you end and the undesired part begins with a marker helps a lot as it stays there for a few days even when you're naked.
Pretending
It can be as simple as not using one (or more) of the parts that don't belong to you, pretending it's not there. If you want it to feel more believable you can fold the limb and cover it in bandages so it looks like a stump, though personally I don't go this far as it ends up making me more self aware of what I'm actually doing rather than helping. If it's an eye that bothers you you can wear an eye patch, or earplugs for ears, get creative with it. Sometimes I'll wear my husband's glasses to make my vision all blurry so it feels the way it should be.
Sensory
This ties into the previous two points, but finding ways to trick your brain into believing your body is the way it should be for a little while can be helpful. Here's some examples: covering a limb in dark fabric in a dark room so that it looks like it's not there; drawing seams and little details on a limb so that it looks like a prosthetic; running a spiky roller thing across the line of separation to make it feel like there is physical separation; wearing a blindfold / eyepatch for visual stuff; there's lots of things to try. Usually weed helps with this a lot as it makes suspending disbelief easier.
Art
You can draw your ideal body (or commission someone to do so). Personally this helps me a lot, having a goofy little critter I can point at and go "dat me". I like having art of me in situations I'd normally find myself in, except with the body I should have, it brings me a lot of comfort. Though getting more creative with it is also fun.
Conclusion
It's hard to not feel like a freak having this, but it gets easier with time. It's ok to have this, it's ok to be like this, you didn't choose this, it's not your fault. You're not alone.
I am really hopeful the medical community will take us seriously someday and that there will be treatment options available. In the meantime, I'm going to do my best to be open about this so I can help destigmatize it and help those who feel alone feel seen.